Archive for January, 2007

Low Counts


Today we visited the clinic for a blood count check. Adelaine’s counts are still quite low, which really they should have gone back up by now. Also, she seems to be fighting off a cold. No fever so far! Please pray that her counts go back up and that the cold goes away.

Also, the other night Doug was holding Adelaine and her knee starting hurting her very badly. It went away as quickly as it came and she hasn’t had anymore problems. This is most likely nothing, but bone pain in a leukemia patient causes quite a scare. The doctors aren’t too concerned and are just going to watch for any more signs. They may pull more bone marrow in March when they do her next spinal injection. Honestly, because she has been taking her chemo as prescribed, there’s no real reason for concern of more leukemia. However lets all pray that she is clear and free and remains that way.

Dear Lord,

We lift Adelaine up to you. We pray that her counts go back up to a normal level, and that her cold goes away as she sleeps today and tonight. We also pray that the pain in her knee had nothing to do with cancer and that she remains cancer free for the rest of her life. The love and protection You give to precious Adelaineis so comforting. Thank You that she is in your hands and that those hands have forever healed her from this horrible disease.

In Your Holy name we pray.
Amen

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We made it through our colds that Bowen and I had and Adelaine did not get sick! Praise God for that! On Tuesday we went to Adelaine’s visit at the clinic. These visits are very emotionally difficult for her. She does not like getting “sticky prickies”, who does? I explained that today she would not have to have her port accessed, and she processed that information quite well. She did not cry today for the first time at the clinic! This is huge progress for her, especially since she did have to get her finger poked to test her ANC levels. Her counts are low because of the treatment she had done two weeks ago, and because she successfully fought off the colds that Bowen and I had! So, we just have to be extra careful with her until they go back up. Here is some more information regarding Adelaine’s counts and what they really mean…

The “ANC”

The Absolute Nutrophil Count

The absolute neutrophil count (ANC) is a calculation of the total number of white blood cells available to fight off bacterial infections. White blood cells are sensitive to most chemotherapy and the number of white blood cells will start decreasing after Adelaine receives chemotherapy. The ANC will reach its lowest point 7 – 10 days after she receives chemo.

When ANC levels drop below 500, she is at risk for a serious infection. One very important reason for frequent clinical visits are to check ANC levels.

In a normal healthy child Adelaine’s age, the Absolute Nutrophil Count(ANC) should be between 1400 – 6600

Adelaine’s ANC from date of diagnosis to present:
07/01/06 ANC 0
07/02/06 ANC 0
07/07/06 ANC 200
07/11/06 ANC 100
07/17/06 ANC 300
07/24/06 ANC 1200
07/31/06 ANC 5900
08/07/06 ANC 1900
08/22/06 ANC 2800
08/29/06 ANC 2300
09/05/06 ANC 1600
09/19/06 ANC 2300
10/04/06 ANC 1200
10/16/06 ANC 1400
10/19/06 ANC 4500
11/02/06 ANC 4200
11/07/06 ANC 4600
12/05/06 ANC 2000
12/12/06 ANC 1500
12/14/06 ANC 3400
12/19/06 ANC 1300
12/22/06 ANC 600
12/29/06 ANC 1300
01/09/07 ANC 3800
01/23/07 ANC 700
01/31/07 ANC 800

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Jesus and Adelaine

Jesus and Adelaine

One of the many gifts God has given to us is peace. Without Jesus, our hearts would be filled with worry and turmoil. We know our loving God holds Adelaine closely to Him and will never let go. This great knowledge gives us refuge during this time of war with cancer. Oh thank you Jesus that we are able to sleep soundly at night knowing that You are such a loving God and that You are in control.

About the picture…
Our very loving babysitter, Ashley, and her friend, Heather, photoshopped Adelaine into the picture. When I first saw it I was absolutely speechless. Didn’t they do a wonderful job!

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Adelaine at the begining of her blood transfusion

Adelaine at the begining of her blood transfusion

Adelaine at the end of her blood transfusion

Adelaine at the end of her blood transfusion

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Beach Run!

012107-adelaine-bald-head-cancer-child-walking-on-beach

Adelaine took her first beach trip of the New Year today. We praise God! She and her guys had a fantastic time chasing seagulls, playing frisbee, and metal detecting (Mason got a metal detector from Santa)! Adelaine smiled and laughed the entire time. Earlier today we went to church, last Sunday was our first Sunday back in a few months. We had stopped going for a while until Adelaine got into the maintenance phase of her treatments. We visited a new church today, and an old friend of Adelaine’s was there, Josh Graubard.

I have to mention Adelaine’s Josh further. Adelaine seems quite smitten by him! She has known him since she was a baby, and has always been crazy about him, who by the way is in the 8th grade! When she was in the hospital she would always ask about him, and was delighted when he came to see her, and of course his parents and little brother Jesse (who is Bowen’s age). He brought her flowers, per her request, which she still has in her room. He shaved his hair along with Doug when she started loosing hers! Who could ask for a better guy, right? She often talks about him even when she hasn’t seen him in a while. The way she dotes over him is so funny to us. We certainly are not one’s to encourage crushes, in fact if anything we would discourage them. But, to watch her around him is So Funny! All during church today she was completely entertained by him.

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Josh shows total devotion!

He and his family came over last weekend and we all had a nice visit. With Scott changing jobs and us not going to church it had been too long since we’ve gotten together. Josh’s parents, Scott and Julie have been so wonderful to us throughout all this. Julie is a breast cancer survivor and they really understand much of what we’re going through. When we were at the hospital, Scott and Julie would come and visit. Scott would stay with us for hours and hours. He came and prayed over Adelaine many times. Scott and Julie have really been able to use their cancer experience to bless so many people, including us! The love and support we received from the Graubard family has made a huge impact on our lives. I would not have wanted to go through those early days of finding out without having them be a part of it. We just didn’t want to be alone and they really understood. Who could ask for better friends?

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Spring in January?

spring in january for adelaine during cancer treatment

spring in january for adelaine during cancer treatment

This week has been a great one for Adelaine. Bowen and I have both been sick with colds, and so far Adelaine is feeling just great. She was allowed to skip clinic this week because her counts were so high last week and no port chemo was due. On Monday, MLK day, Adelaine woke up with rosy cheeks. I put cream on them thinking they must be chaffed, only to realize that no, her color is back, truly back!

All these months that passed, Adelaine wanted to go outside, but just didn’t have the stamina to really stay and play. Well, she played outside for a few hours everyday this week. She rode her tricycle, her scooter, played in the clubhouse, and swung in her swing for hours. We are so thankful we live in sunny south Florida. Now that Adealine is feeling better we can really take advantage of the mild weather we’re having. We’ve had all our windows open for most of winter and it’s been in the upper 70’s all week. The birds are singing, the grapefruit is falling, it’s truly is a tropical paradise in our back yard, minus the weeds!

On Tuesday when she took her Methotrexate, it was like someone stuck their foot out and tried to make her trip and fall. She stumbled a few days but now she’s back to full speed. We put her to bed at 8:00 pm, and by 2:30 this morning, she was literally up and running! Doug and I took shifts entertaining her. It was like she was saying, I’m alive, I’m alive”!

Oh, and I have to mention her new ability to protest! She has thrown about three all out fits this week. Before, she just didn’t have it in her to really let us have it. Well, she does now!!!! I told Doug that she’s going to need a little retraining now that she is springing back to life again!!!

When we look at her now it really is like she has new life. Her color looks great and her little cheeks haven’t had this much color since last April! Her hair is so cute. It’s soft and fuzzy, like a new baby chick.

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