Archive for September, 2007

I couldn’t let morning come without first making this all important post…. In one year from today, Adelaine will be DONE WITH HER TREATMENT for Leukemia. That’s right, 12 more months to go!!! So far we’ve made it 1 year, 2 months and 11 days, but hey, who’s counting!!!!

Mark your calendars,it’s a girl party! The last weekend in September 2008, all us mothers, daughters, and grandmothers are planning a trip to New York to have a tea party at the American Girl Tea Room, and to see a Broadway Musical (Beauty & The Beast perhaps), in honor of Adelaine getting her life back!!!!! Everyone is invited, we mean everyone. If we’ve never met, we’d love to meet you for the first time in the Big Apple. I will be posting more details as it gets closer to time. Adelaine already knows about the trip and has a pretty good understanding of the meaning behind it, lets just say she’s very excited! She has a statue of the Empire state building in her room that she got at the cancer Relay for Life walk we did this year. Our goal has been set, and we can’t wait to reach it! We hope each one of you will be there to celebrate life with us!!!!

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An Unsung Hero

Adelaine and Dana

Today Adelaine and I went to the Children’s Cancer Center in Tampa, as we do every Tuesday. There is so much love that all the volunteers give to those children, no wonder it’s the highlight of Adelaine’s week! Afterwards, we went out to lunch with Miss Kay, her daughter and cancer survivor, Dana, Anissa & Peyton. The conversation usually runs deep as we are able to express and understand how cancer is affecting our lives. Even after the treatments are over, as it is for Dana, cancer has a definite way of forever changing things. Once you go down that road you can never go back.

With our daughters all victims, we too as mothers have many battle scars from the brutal fight. It’s so true what they say, when one family member has cancer, the entire family has cancer. We are all in this together. I don’t know why some of us are chosen to have a standoff with cancer. I don’t know why so many fight the good fight and loose. What I do know is when forced to fight, we fight.

Kay has been such an inspiration to me personally, as well as her daughter, Dana. I shared once again with Dana and Kay, just how important they are to us and how inspiring they are. I also said how sorry I was that they had to go through so much in order for us to have this unique relationship. Dana looked up ant me and said, “I’m not sorry, I’m not sorry at all!”

After witnessing first hand what it’s like to battle cancer, and hearing Dana’s mother speak of how much Dana has suffered, knowing just how scary, painful and awful it is to fight this monster, those words she spoke to me from across the table are forever engrained into my being. I know the suffering behind closed doors, I know the pain, I know the fear and the helplessness, I’ve experienced it all through a mother’s heart, and Adelaine’s eyes. Dana is dainty and petite, like an angelic ballerina, her name fits her perfectly. She is soft spoken has a smile that penetrates all the way to your heart. She has a captivating presence about her. She has the beauty of a rare angel. She is a sincere woman of God. She also possesses the strength of a lioness, as she has proven not just by beating cancer, but also by her words spoken today! Dana is a hero, an unspoken hero. It is nothing short of an honor to know her, and Adelaine has a brave warrior in her life to help her find her way!


Adelaine and Peyton

Adelaine picked Hibiscus Flowers for her “teachers” at CCC today!


Thank you to everyone who has supported and loved us through all this. Cancer is no less scary to us now, than it was before we went head to head with it. In fact, it’s probably even more frightening. It is untrustworthy, it is cold, it is sobering, it is the definition of darkness. If you are able and willing to walk along that frigid, dark road with someone simply by choice, you are a good friend, more treasured than gold. We thank God everyday for your support.


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Quick Update!

Adelaine is finally 100%, after her big treatment 10 days ago. The steroids take such a toll on her and make her so depressed. It breaks my heart over and over again, each month giving them to her. This Wednesday, September 12th will mark one year left to go!!!! (We delayed the end date for her treatment by a week because we held her spinal injection and steroids for our “Dream Fund” vacation to Disney)! The doctors wanted to make it up this month and give her everything a week closer together, but I objected and they finally agreed)! Today the children had a triple dental appointment! Adelaine did a lot less screaming this time. I’m pleased and amazed to announce that they had no cavities!

As for keeping our house, we were able to mail out the money on Friday! Thank you so much for all the people who helped make this happen. You were a direct answer to prayer, how thankful we are. Our house may not be a mansion on the beach, but I love it here and will be content to spend the rest of our lives here. It is our home and we are so very grateful that it is going to continue to be. I have a possible new client to begin caring for as early as next week, please pray that it will all fall into place.

This weekend is the Pirates and Princess Party at Carrabba’s, please pray that everything goes well. People have been so kind and supportive. I can’t begin to explain how touched we are. I feel very supported and loved by our community; we are pleased and proud to call St. Pete our home. God is so good!

It’s been a few months since last time we were in the Hospital with an illness. Things feel so much more normal than last year. I feel like I get to be a mom again to the boys. I can’t believe all that they went through. They are both such troopers, I am so proud that we all have made it this far! We are still riding our bikes to school everyday, and it’s much easier to do life as if everything was the way it was before cancer. I am so grateful just to be ABLE to be the one to deliver the boys to their school and to be home to greet them everyday. (Doug takes a late lunch and picks them up). All the things I used to take for granted mean the world to me now. Sometimes, Adelaine does so great its like she’s not even on chemo, but then something happens that’s a big reality check. At the clinic last Friday the new Oncologist at our office checked her reflexes in her legs. Guess what? She has none! The doctor said it is from the Vinchristine Chemo, which she had gotten an entire month before. Little things like that really disturb me. Today at the dentist, her gums bled and bled, her blood has a hard time clotting from the chemo. Also, last Friday I took her to get her ear tubes checked. They both are still in. (I had three different doctors tell me that her left tube had fallen out, but they just couldn’t see it from all the dried blood)! So the Ear Doctor cleaned them really well and pulled out what looked like rocks!!!! (Sorry if I just grossed you out)!

Unfortunately we can’t always choose our path, but I must say I couldn’t be any more delighted to have my three babies. They are each strong, kind, compassionate, smart and amazing. I fall in love with them over and over. I love my life, and I am so thankful to be apart of there’s!

One last thing, Adelaine’s Songs of Love came in the mail today. Songs of Love is an organization that composes and choreographs a song in honor of a person who has a critical or life-threatening illness. Let me just say that they did an amazing job. We were all moved to tears. It is so beautiful, and of course Adelaine just loves it! The boys were a bit curious why she got a song and they didn’t. After explaining it to them they were fine. They have their own boys “stuff” and she has her own girl “stuff”. It really works out well, so we don’t really have an issue with jealousy. I’m so thankful God gave me two boys and then Adelaine. An extra girl in the mix would surely have a hard time with all the extra attention. Anyway, I can’t wait to share Adelaine’s song. It’s called, “Adelaine, Love Reins”. I’m hoping Miss Ashley can come over sometime this week and we can put it in You Tube with pictures of our Dream vacation!

Thanks for taking the time to care!

God Bless

One last thing for Anissa, could you help me get the Boo Cat. off Adelaine’s website? Aren’t people silly!!

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