Archive for November, 2007

Oh Yeah


Adelaine is doing good – except for the rash thing. Yesterday, the Dr diagnosed it as a reaction to the 6-MP chemo she is taking. It really hacked us off when he told Angela 2 weeks ago, ‘No one has ever died from a rash.’ (Our allergist about fell out of her chair when Angela relayed that little tidbit.) Yes, our baby’s Oncology Dr’s have poor bedside manner, when you are privileged enough to see one of them. You would think with all the money they are making from our insurance company they could at least be pleasant… (Oops, forgive my husband, sometimes you just have to let a little bit out! I guess thats what we all get because last night I mentioned to him that when he decides to update Adelaine’s website, maybe he should at least mention her!!! Not all doctors have a bad bedside mannor. Take our pediatrition, Dr. Karges for example,he’s not only the best pediatrition ever, he has a wonderful bedside mannor. Maybe that one doctor had “word vomit” that day. We’ve all said things we wish we could take back, right?) Angela

Mason is doing good at school. He had some anxiety about going back after a week off, but everything worked out fine once he saw all his buddies. Mason is and has always been a tenacious soccer player. Tough defense has always been his forte’. He isn’t the fastest guy on the field, but he does love to run, and runs extra after every practice to help elevate himself.

Bowen is our miniature artist. He loves to draw. He also has decided he wants to be a magazine model, as long as it doesn’t interfere with his ultimate goal of working at Pet Smart in the fish or now dog department. He also is a tenacious soccer player. He has swooped in at the last second in every single game this year to stop what would have been a certain goal. One of the teams we were murdering uh I mean playing had all 1st year players and a 1st year coach. I was helping him and them out to make certain everyone was having fun. They had a breakaway finally and out of nowhere comes Bowen to knock the ball out just before it crossed the goal line. I was disappointed and ecstatic at the same time.

Georgia “Daisy” is doing good herself. She fools us into thinking she is potty trained until you turn your back and she poops on the floor next to the potty pad then quickly eats the evidence. The only traces are the piece stuck to her paw from stepping in it, the bad breath, and the streaks left on the floor. Each night @ Grandmama’s house Daisy was chasing Adelaine around the kitchen table with Adelaine giggling like the little girl that she is. The joy that this puppy has brought into her life is amazing. Thank you www.puppiesforsalebynet.com Pisces “Georgia Daisy” is an amazing gift for our sick baby.

Angela is sick. She started coming down with something on her birthday I think. Turning 21 really takes it out of you. Pray that she gets well soon and keeps her yuck to herself.

Thanksgiving with Grandaddy’s special smoked turkey and smoked ham coupled with Grandmama’s sweet potato soufflé, asparagus casserole, giblet gravy, and all the other yumminess didn’t help. I ran a lap with the Grasshoppers Under 6 soccer team last night around a full sized soccer field. I was praying for death. I need to start riding my bike to work again. The weather is right. The heat has subsided somewhat. Yesterday it only got up to 85 degrees. Mama Linda had snow Thanksgiving Eve. We had 80’s. The weather outside is horrible here this time of year…if you are trapped inside an office all day.

Remember to eat healthy (do as I say not as I do), exercise 20 minutes plus a day (again), and hug your kids everyday(I do have this one covered).

dug

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nov-27-2007-adelaine-and-daisy-baby-toy-poodle
Today I FINALLY sent an email to Jim, Gilda and Kris from the Puppy Boutique thanking them for our precious Daisy Dog! I wanted to share my thoughts with you, so what I sent went something like…

How can we ever thank you enough for what you’ve done for our family? Every good day that Adelaine has makes all that she has gone through seem worth it. One week ago today, something significant happened in our daughters life, she got her wish, a puppy! On Monday, November 5th, when we got an email stating that you wished to donate a puppy for Adelaine in hopes of making her life a better one, we were so overwhelmed, it was just unbelievable! I want you all to know that you have made her life better, that and so much more. I thank you from the bottom of my heart, we all do. Adelaine’s brothers, Mason and Bowen are just as excited over Daisy as she is. All five of us love our new baby! To see the smile on Adelaine’s face when we placed that puppy in her arms was priceless, it brought me to tears. I have never seen her so happy. Having the puppy, Adelaine named “Daisy”, here has been the best week of Adelaine’s entire life.

The shock and heartbreak we felt when our 2 year old daughter, Adelaine, was diagnosed with Leukemia in July 2006 was paralyzing. Adelaine has been in this battle fighting cancer for almost half her life now. There have been many days, weeks, and months of unbearable sickness where darkness threatened to consume our daughter. Sometimes it felt as though her pain and suffering would never end. She has endured many challenges with chemotherapy treatments and hospital stays and has spent countless hours in the waiting rooms of doctor’s offices and emergency rooms. Living this horrible disease has proven to truly be the fight of her life, but through it all we’ve had much hope and faith that she would beat it. She is an amazing little girl, who has graciously trotted along a path that none of us would have chosen for her. She is smart, loving and courageous. During those seemingly endless days of suffering, I often wished I could somehow buy back those days and make them all sunny and joyful, but even a mother’s love has proven to have limitations! Although it is not possible to change the past, your kindness and compassion has replaced so much that was robbed from our precious daughter.

A few nights after we got Daisy, Adelaine was in her bed and I went in to check on her. She was sound asleep and laughing, literally laughing in her sleep. I knew she must be dreaming about Daisy! Daisy has brought so much joy and laughter into our family. I know that when Daisy was born she was meant to be here with us. Thank you so much for your willingness to help make our daughter’s dream come true. Adelaine has 9 more months of treatments left. Yesterday during one of her chemotherapy treatments she said with tears in her eyes, “Once were done here, I just want to go home and see Daisy”! Every smile, every giggle puts her suffering where it belongs, in the past! This Thanksgiving we were able to celebrate an extra special something as we welcomed Daisy into our home as part of our family. Already Daisy has had a significant impact on all our lives. Truly we could never say thank you enough.

…I hope they understand how much they have touched our hearts and impacted our lives!

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As for a Daisy report, yes she is adjusting well. She cried the first 2 nights, but now sleeps happily through them (wish I could say the same for me) Miss Adelaine hasn’t slept through the night in a year and a half! She is relatively easy to care for. She doesn’t shed a hair which is wonderful, she air dries after her bath, (thank you 80 degree Florida weather) and she is 100% house trained to use a potty pad. She has the best disposition. She’s calm yet playful and doesn’t seem to have any bad habits (like begging for food when were eating or chewing the furniture) oh yes except the desire to eat her poop, like Doug so graciously pointed out in the last blog!! I do believe however, that we’ve broken her of that today! How many baths has she has so far you may be wondering? Well it’s me, so honestly, I’ve lost count!!! She is such a good girl and very very smart. It is going better than I could have ever imagined. We were so blessed with her! Doesn’t she look like she belongs in our family!!!!

As for sweet Adelaine, about a week and a half ago her counts bottomed out to 300. They haven’t been that low since she was first diagnosed. For the first time ever the doctors decided to hold her chemo for a week! We were quarantined in our home praying that she wasn’t coming down with or wouldn’t catch something. Just before Thanksgiving they went back up to 1,000 and yesterday were at 1600. Thankfully she didn’t get sick during Thanksgiving this year. Georgia was fantastic, we really enjoyed spending the holiday with my parents. Being in South Georgia I FROZE the entire time. My dad said, “Are you crazy its 70 degrees in here”. I’m not sure if I was coming down with something or I got sick from being so cold, but somehow I did manage to leave my voice in Georgia. Tonight I called a friend and when I went to speak, all that would come out was a squeak! We missed Adelaine’s “Pretend School” today, and she was not too happy about that. She said,” Well I’m going to miss all the fun”! Thank goodness we had Daisy she was my only saving grace!

Yesterday was her Oncology appointment and she got Vinchristine into her port and started STERIODS once again! Mood swings here we come! This afternoon Adelaine had an appointment at the Dermatologist. The rash that was one under her arms has spread to pretty much her entire body. Plus her face is cracking and peeling and has red patches all over. During Thanksgiving she looked like her face had been badly burned. Now come on, cancer has already done a number on the hair, and now the face too (which sadly is the least of our worries)! The good news is that the dermatologist has assured me that her face will not scar. Tonight it looks MUCH better thankfully. I got some good tips on how to deal with her skin issues. Apparently this will probably go on during the duration of her treatments, which by the way 9 ½ more months to go!

As for the rest of the Powell’s, so far no one else has caught my cold (accept Mom and Dad in Georgia), and the boys are back in school. Bowen insists that we bring Daisy to and from school with us everyday! In fact, for my birthday I got the cutest handbag/puppy carrier for her! It disguises her well! We take her nearly everywhere we go with us. Adelaine and I even snuck her into Wal-Mart yesterday! On our trip to and from Georgia we stopped at ever Petsmart along the way, so Daisy could have some fun and stretch her legs too! It’s always been my motto, “Dogs are people too”! Ok, ok anyone that remotely knows me knows that I’m really not that much of a dog person. In fact, when I told my friend Barb that we were getting one, she said, “I’ll come and see it, but I’ll try not to get too attached…, I know that you’ll be taking her back after about 2 weeks”! My reply to that, “Now Barb, that wasn’t very nice”…, but I understand where she was coming from! Don’t forget, she’s a poodle! It’s like Doug says, “We got a dog, well sort of”!!!!

Good night!

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Rewards


In order to reward the faithful readers of Adelaine’s blog, I will occasionally add a motivational quote or humorous piece (at least I will think it is humorous).

So today we have the ultimate man


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Jack Bauer

Here are a few FACTS about Jack

Jack Bauer’s healing factor is so powerful he doesn’t brush his teeth at night. Jack Bauer just punches all his teeth out his mouth and grows a new set by next morning.

If you break one of Jack Bauer’s ribs, he’ll just use it to stab you to death.

When you get in a fist fight with Jack Bauer, he kills you with your own fists.

When Jack Bauer plays Texas Hold-em he only gets one card, “to keep it fair”.

When you sneeze, it’s Jack Bauer’s spirit punching you in the face.

Jack Bauer can clap with one hand.

When a convicted terrorist was sentenced to face Jack Bauer, he appealed to have the sentence reduced to death.

Most children slept with a teddy bear and blanket when they were young, Jack Bauer did the same thing but with a real bear.

Jack Bauer doesn’t eat honey, he chews bees.

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Since we can remember, Adelaine has asked for a puppy. Recently, we went to a friend’s party and they just happened to have a dog. Adelaine never let it out of her sight, she laughed and giggled the entire evening! I’d always thought about getting her and the boys a poochy deep down inside, but my friends would remind me of the responsibility, so I would work through any desires!!!!

Well after all she’s been through and seeing how much joy she has around one I reconsidered once again. During my phases of insanity (entertaining the thought of actually getting one), we always went back to the Puppy Boutique Website which is an incredible kennel located in Miami. So a few weeks ago I sent them an email explaining about Adelaine and how much she would love to have one of their special pups. Puppy Boutique’s specialty is Teacup and Toy breeds and many of their pups are photographed sitting inside a teacup! We all know how much Adelaine loves a tea party, so it’s only natural that this website would be her, well, her cup of tea!!! As cute as those precious pups in teacups were, I wanted to make sure that we would get a very happy healthy puppy to fall in love with. Let’s just say that after doing the research I knew that with one of their dogs, we were getting the best of both worlds!

What happened next was absolutely astonishing; they replied back that they wanted to “make Adelaine’s life a happier one” and that wanted to donate a pup free of charge to her!!! We all decided on which dog would be best for our family, with Mason’s allergies we were very limited to Poodles and Maltipoos. Yesterday we got the news that everything was set and we could come and pick up the puppy of our dreams! Four hours later the children and I were driving down Alligator Alley and on our way to meet this sweet puppy that Adelaine has longed for over and over again.

The three children have fallen head over heels with our new baby, and so have I (Doug too, he grew up with dogs, but hasnt been allowed to have one since we got married). She is sweet and docile and absolutely gorgeous. She was born on August 26th 2007, and currently weighs 2 pounds. She is expected to weigh about 7 pounds once she’s full grown. Adelaine has named her “Daisy” and we couldn’t be happier over her. Here she is…


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Here is the website for the Puppy Boutique. Get ready to have your heart melt!!!
http://www.puppiesforsalebynet.com/poodle.htm


Daisy Georgia Powell, welcome to your new family!

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“Thanksgiving dinners take eighteen hours to prepare. They are consumed in twelve minutes. Half-times take twelve minutes. This is not coincidence!” – Erma Bombeck

Sorry about not posting more often. Our lives have been in overdrive lately. I’m working lots of hours and Angela is working 2-3 nights a week herself so when you throw in school, soccer practice on Mondays and Wednesdays games on Saturdays, Tuesday morning “ Pretend School ” and all the holiday parties that started once school started we have been everywhere. Not to mention all the over the top events and activities that Adelaine was too sick to do last year, but is now a part of. Oh yeah, I guess you do need to throw in the whole going to the Dr for half a day thing every week. Here are a few recent highlights:

Halloween party @ Gus’ house – (Gus is a boy that Bowen went to Pre-K with @ Lad & Lass, they now are in Kindergarten at the same school and we played Gus’ team in soccer on Saturday.) Gus’ garage was decked out as a haunted house that Bowen loved hanging out in, Adelaine was brave for about 1.5 seconds in and that Mason refused to enter.


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Halloween – tons of unhealthy choices were obtained and then disposed of the next day. Bowen’s new school buddy, Jamel and his mother went with Angela and the kids trick or treating.

Nov 2th – we did the event with The Brad Richards Foundation. See previous post.

Nov 4th – The Children’s Dream Fund had 2 tickets to the Buc’s vs Cardinals game for us. In order to be fair to the boys I went to the game with Josh Bohlander. Josh & Kristen have done more for us in relation to picking up kids than anyone else since Sis got sick. Angela has spent lots of time getting to know Kristen so it was my time to do male bonding with Josh. Josh is also a huge Cubs fan so that instantly makes him a great guy. We had a blast starting out the fourth row of the third level with a fantastic view of the game. We moved down to the front row into the Mayhew’s seats when they left at the end of the third quarter. We had a blast, and actually the seats in the third level had a much better view since the majority of the foruth quarter was played in the other end of the field.

Nov 9th – Steve Yerrid Fishing Derby. Steve Yerrid was one of the attorneys that sued the tobacco companies and won. Steve has vowed to use a large chunk of the proceeds to benefit families with cancer. Friday was a kids fishing derby that kicked off an actual fishing tournament the Mercury Grand Slam Celebrity Fishing Tournament. There were fishermen their that I actually recognized from television helping the kids fish. The only guy that I could actually put a name to was Wade Boggs. Yeah I know he was a baseball player, but now he is a professional fisherman that was helping sick kids catch pin fish in Tampa Bay. http://www.pcfusa.org/special_events.htm

Nov 10th – Ian Beckel’s Blue and White Party . Miss Ashley babysat the kids and Angela and I went to the Hard Rock Hotel in Tampa and had a great time. The proceeds of the event benefit The Children’s Cancer Center. The event was held out by the enormous pool and featured various DJ’s a comedian for the emcee a fashion show and all the beautiful people of the Tampa Bay Area were there. Several families from CCC were represented there and we all had VIP access. Fantastic food and drinks. Over 2,000 people attended. The outdoor party ended at Midnight and then Angela and I went inside to the afterparty @ Floyd’s. Angela talked Ian into including us in his entourage to get us in free to Floyd’s, even though I told Ian earlier he was on my “man crush list”. If you have to ask then you need to listen to Ron & Ian’s show 9-noon WDAE 620 AM www.620wdae.com. We got home about 3am. I am still recovering…

Nov 15th – CCC annual Thanksgiving Dinner – the food was provided by The Columbia and Boston Market. What a great way to stretch our tummies before the actual big day!

Nov 16th – The Steve Yerrid Foundation sponsored 4,000 tickets to the Lightning Hockey game. Adelaine’s counts were @ 300 so she had to stay home, but the boys and I went and met Max and Myles Jones and their Mom, sister and her friend at the game. They gave out yellow shirts and yellow thunder sticks which the 4 boys decided the sticks made great swords. The Lightning won 5-2. Richy scored Marty scored 2 Vinny Scored and Roy got into a fight. It was a blast! Check out Rappin with Roy Andre Roy (pronounced “wa-ahh” is th eLightnings top Goon. He is also the jokester in the locker room.

Brad & Vinny’s Commercial

Richy only gets in 1 fight a year. Here is this years Brad Richards Fight

Nov 17th – Bowen’s soccer team Grasshoppers beat Gus’ team Ninjas. It was great to see the switch come on for Noah. Each year the first year players on our team have a game where everything starts to make sense. Noah’s switch flipped and he had 4 near misses for a goal. Next game will be his. Mason’s team Bulldogs didn’t fare as well. I think part of it may have been that 3 of the players, Mason, Max & Myles were out until at least Midnight at the hockey game the night before.

Nov 17th – Angela & Adelaine went with Miss Mary to help her decide on a new vehicle to purchase. Miss Mary came home with a 2008 Lexus SUV. Angela knows how to spend some money.

Nov 17th – Baby Leo’s sister Livia had a birthday party. Daddy Leo has 8 siblings and they also invited the families at CCC to the party. It was an all day affair that the boys and I went to. They have 2 dogs that would occasionally sneak the food off a kids plate. The Golden Retriever “Lucky” also is a cigar smoker. He made off with Leo’s brother in law Alex’s cigar. The boys had a blast with all the kids and the dogs. Mason’s allergies did pretty well, he kept washing his hands throughout the day. When we got home his eyes were a lttle red but not itchy. Leo has one of the coolest jobs in the world. He is a translator for 5 professional baseball players. His biggest name client is Chicago Cubs Outfielder, Alfonso Sorriano

Nov 19th – The kids and Angela are on their way to pick up Sis’ new puppy right now! Adelaine has a special place in her heart for animals. With all that she has been through this past year and a half Mommy is willing to bring a potential mess maker to reward her baby. Here is a link to the site that is donating the puppy. http://www.puppiesforsalebynet.com/poodle.htm Scroll down to “Pisces” to find our newest family member.

Wednesday we are heading to Leesburg, GA for Thanksgiving at Grandmama’s & Grandaddy’s. Thursday just so happens to also be my beautiful bride’s 21st Birthday! Just remember that the dinner you are eating is a celebration of Angela’s birth.

dug

P. S. Uncle Bob, stay away from the fried turkey, you know what happened last time!

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