My Story
IN THE BEGINNING…
On Saturday, July 1, 2006, I took Adelaine to All Children’s Hospital at around 5:00AM, by 7:00AM she was diagnosed with Leukemia…
Adelaine had been sick and sleeping in bed with us for about a week. On Thursday we had taken her to the Pediatrician and he said she must have a virus or the flu. (Usually when the children are sick we try to keep them home and care for them ourselves.) Everyone knows the only thing that can heal a cold or virus is R&R!! However mom noticed Adelaine had swollen glands behind her ears. It felt like Skittles or M&M’s were implanted under her skin. Finding this really scared us, infact, I even asked our pediatrition, after we rushed her to his office, if she had cancer. He was like ,”Oh my goodness, no she doesn’t have cancer”! He said that it was normal and she was fighting off an infection. Not to worry.
On Friday she had some other swelling that again greatly concerned us out and really bothered her. We again called the doctor. He determined that she must have a bladder infection and she began antibiotics. By about 3:00 AM Saturday morning we knew that something was really wrong. Angela decided to take her to All Children’s Hospital, thinking that she’d be back home and in bed before the boys ever knew they were gone!
Our Pediatrician, by the way, was right on the money with his diagnosis. It should have been the flu or a virus and a bladder infection. I believe that he would have eventually found it, but we were very early into it. Leukemia comes on very acutely, and Adelaine, was very early into it.
I do, however, want everyone to know that if a child is ill and the Pediatrician can’t identify the problem, please go get a second, third or forth opinion. Pediatricians are not trained to look for cancer. Cancer kills and does not just go away. We have made so many friends whose children have suffered so much more because of a missed or lack of diagnosis. IF YOUR PEDIATRITION SAYS THAT YOUR CHILD IS FAKING GET A SECOND OPINION!!! Some signs to look for are swollen glands, bone pain which may alternate around the body, flu like symptoms which do not go away. If you notice that in photographs your child has only one glowing white eye, get it checked out. These symptoms MAY be a sign of cancer. I’ve seen a lot of it, but now our circle is a group of people who have come together due to rare circumstances!
That being said, here’s what happened next…
The doctor at All Children’s said that it probable was just the flu and bladder infection, and to continue with the antibiotics. Almost as an afterthought he suggested we do a blood test just to be certain. When the nurse came in I questioned if we really needed to draw blood and she talked me right into it, the blood was drawn …
Later the doctor came in and apologized for taking so long. I honestly didn’t notice as Adelaine and I were snuggled together comfortably watching Barney videos!! The next words out of his mouth totally blew me away.
He said, “We found some irregular white blood cells, and she either has cancer or a virus”. He then offers to have the cancer unit come in to talk with me. I declined and said we’d just go with the virus theory for now, knowing that his offer was his way of saying “its cancer”.
We were immediately admitted, and more blood was drawn. By this time Doug was with us. The oncologist came in and closed the door, then announced that our little girl had Leukemia.
MY STORY…
My name is Adelaine Brighton Powell. I was diagnosed with ALL Acute Lymphatic Leukemia on July 1, 2006. I’m 2 1/2 years old and I have a kitty named Meow. She is white and has blue eyes like mine. Everywhere I go in the house I take my kitty. I even dressed up like a kitty for Halloween. I like to dance and play with my baby dolls.
I got sick in July and I got to stay in All Childrens Hospital for 10 days. I got to eat spaghetti 3 or 4 times a day. I now have a port in my chest for sticky prickies. I dont like it when mommy puts the numbing cream on my port before I go to the clinic, so now I just get a sticky pricky in my port with no cream.
I have a new haircut just like my daddy. He got his first but he has to keep cutting his. My hair stays nice and short and doesn’t get in my eyes anymore.
I love to watch Barney. I even have a TV in my room now and I get to watch Barney anytime I want. My friends gave me lots of Barney videos. I have 14 Barney videos and I almost have them all memorized.
Every night I pray with my daddy that I will keep getting better and that I never ever get cancer again. Thank you for visiting my website. Make sure you check back often.
6 comments
My Story Hope4Adelaine org | Weak Bladder on June 7, 2009 at 8:31 pm
[...] My Story Hope4Adelaine org Posted by root 4 hours ago (http://hope4adelaine.org) He determined that she must have a bladder infection and she began antibiotics some signs to look for are swollen glands bone pain which may alternate around the body flu like symptoms which do not go away leave a comment name required mail will not be pu Discuss | Bury | News | My Story Hope4Adelaine org [...]
Michelle Chunn on July 21, 2009 at 7:05 pm
My 3 year old son Cole was diagnosed with lymphoblastic lymphoma May 2009. Your stories are such a insperation and so truthfull thank you for writing them. Your daughter is beautiful.
John Meyers on December 23, 2009 at 5:23 pm
I have a testimony that I have been trying for over five years to tell.People have been trying to find out the secrets of the word of God and the truth revealed by Jesus forever.There is only one way to learn the secrets and that is to trust in the word of God,and the truth revealed by Jesus.It is very simple,Jesus promised to send you another Helper in the name of Christ to reveal all the truth,a person who will live a Christ like life,and after he lives that life he,and only he can reveal the secrets of the word of God.Jesus told us everything ahead of time,he was telling the future.God told you the name of the one he chose to send back in the name of Christ,so when this day came you would know to listen to a Spirit named John.I am claiming to be that John,there is only one who could reveal,God told you his name-God gave the Revelation,or act of revealing to John!
John Meyers on December 23, 2009 at 5:37 pm
All you have to do is open you eyes,and ears to the word of God and the truth revealed by Jesus.Jesus was telling you the truth,John(3.1-13)We have all been born again,Jesus was not telling us born again means baptism,nor did he mean,if you confess you sins and except him as your Lord and savior that you are a born again christian,No!He really means born again.We all have been born,we all have lived then died,we had to pay for the original sin,Jesus freed us from death.Now we have all been born again and we are being judged on the ten commandments.There is life after death,the body dies but the Spirit lives on.God can do what he wants with it,but the choice is yours.If you chose to be a good God fearing person God will reward you with eternal live with him,if you chose to denie his word and do as you wish God will punish you in Hell.The choise is yours.I am asking you to listen to me,John,the one God gave the Revelation too.
John Meyers on December 23, 2009 at 5:57 pm
There is one more scripture I want to leave with you,Probvers(30.5-6)”God keeps every promise he makes.He is like a shield for all who seek his protection.If you claim that he said something that he never said,he will reprimand you and show that you are a liar.” God talkes to you everytime you read the Holy Bible,the Holy Bible is God’s divine communication to everyone who Loves him with all your heart,soul,strength,and mind.The Holy Bible tells you everything from the beginning to the end.God told you who he gave the Revelation too-John,all you have to do is listen!That is the only way to know the secrets to the word of God and the truth revealed by Jesus.In God we trust,prove it,listen to my testimony.Judgement day is soon,and with your help we can defeat all of our enemies,I hold the key to David.
John Meyers on December 23, 2009 at 6:07 pm
The true meaning of the last supper is when His Kingdom comes,He will pass over the earth and take all those with the mark of the beast on their foreheads to HELL,the mark of death.Then we will live in peace,for a thousand years,teaching the truth with a rod of iron,the temple in Ezekiel (40) will be built,the true church of God and of Christ.I am the happiest man in the world,God has revealed to me that I an the promise he made to King David,2 Samuel (7.13-14-15)God’s chosen one!